Meet Lily! Lily(on the right) with her Big Sister Ellie (on the left). Lily was born in April 2009 with a with a rare heart disease known as "crisscross heart".
This is Lily now, at just under 1 year old! Isn't she adorable with that cute red hair?
I know times are tough and I know we're in a recession, but that doesn't mean that heart disease stops killing. My 11 month old second cousin was born with Crisscross heart . It is a type of congenital heart defect where the right atrium is closely associated with the left ventricle in space, and the left atrium is closely associated with the right ventricle. It's safe to say that this is not how your heart is suppose to look. She has already undergone surgery and other operations on her little heart. She will need another surgery at the age of in a couple years and most likely more surgeries following that. All while being closely monitored every 6 months or so.
She will not be able to have a completely normal childhood. But she will have one! She is doing fine now, but it's a scary thing. She looks so healthy on the outside, but her heart just isn't quite right. As of right now, she seems to be passing tests with flying colors.
For Lily, I am doing the Heart Walk 2010. If you feel led to do so, please visit my donation page and make a donation to fight the fight against Heart Disease and Stroke!
Thank you in advance for your support, kind words and donations!
P.S. Lily's mom informed me that if you want to write you a check, please write "Legacy of Life" in the memo line. Your donations will go directly to researching congenital heart defects instead of into the general fund! Thanks again!




3 comments:
Thanks Kayla for joining us in the walk. Please let people know that if they want to write you a check in the memo write "Legacy of Life." That way their donations will go directly to researching congenital heart defects instead of into the general fund! We have been so blessed to have such a supportive family through all of this...and Lily is such a trooper!
Oh this is awesome! Good for you! She is a CUTIE! What a great cause, you are going to have such a rewarding experience!
Yikes, ten days is a LONG time! And I'm sure you have a candy and home decorating store that rival Home Goods and Fuzziwig's. :o) If you're ever in PA, let me know and I will introduce you to them! Have a wonderful weekend!
How awesome of you! you have a wonderful heart!! Hope you have a nice weekend!!! :-)
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